At today’s plenary session of the European Parliament, special attention was given to the situation of the millions of Europeans suffering from rare diseases. Viktória Ferenc, MEP for Fidesz–KDNP and member of the Patriots for Europe Group, stressed in her speech that it is the European Union’s responsibility to ensure that those living with rare diseases receive timely diagnosis and appropriate treatment.

“We welcome and support the Commission’s Action Plan on Rare Diseases. This is not solely a health issue, but also a social one, as receiving a diagnosis takes a severe physical and mental toll on both patients and their families,” she underlined in her address.

Viktória Ferenc pointed out that last year’s Hungarian Presidency also treated this issue as a priority, helping to foster European-level dialogue and improve care for those affected. Hungary is currently working with firm commitment on its Second National Plan on Rare Diseases, which sets out a comprehensive strategy through to 2030.

She also highlighted the importance of strengthening European Reference Networks, which would ensure that all patients have access to the best care. The Commission should support Member States in developing their diagnostic and treatment capacities so that the highest standard of care is available to every patient.